desperate for help with 5 yr old *human* daughter

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ajandj

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Ok, l am at my wits end.. I have a 5 year old daughter named Sara. Sara was a really good baby, only cry when hungry blah blah.
She grinds her teeth.. and l mean seriously grinds them to the point l get up and roll her over to stop her, but that's not what l need help with.

Last year, just before kinder l found that Sara needed glasses. So we went ahead and got them and they really do help her. About 9 months ago, she kept have these*attacks* (for want of a better word) where she would get this terrified took on her face, start really crying and put her hands in front of her eyes. When i asked what was wrong all she would say was that things were fizzy.. her hands in front of her eyes was so she could focus (so i found out, and fizzy was actually her way of saying she was dizzy). If she was walking, she would grab whatever she could to stop herself from falling over. I took her to the eye doctor and nothing. I took her to the GP and nothing. Anyway eventually it stopped.. she went from 3-4 *attacks* as week to completely nothing.

Over the past few days, Sara keeps saying things are getting bigger and then smaller. It will happen for a few minutes and then she's right as rains. Didn’t seem to upset her, didn’t seem to stop her from doing anything. It was like it was just a passing comment, wasn’t upsetting her at all. It happens whether she is wearing her glasses or not. It happens in the day as well as the night.

Last night was shocking... I put her to bed and she came screaming into the lounge room about 10 minutes later.. Eye's like dinner plates.. Gasping to breath.. Absolutely terrified..

"Mummy, mummy. Help me.. I'm having a bad dream.. Bigger, Smaller... Help me"..... I was so scared.. even just thinking about how scared she was, is making me cry now. For an hour, she just cried in my arms, wouldn't let me go.. shaking, l mean really shaking. It took a good 1 1/2 hours to calm her down to the point she could talk to me. Again, the only way she would explain it was that things keep getting bigger and then small. Everything, things in the background.. for ground. Moving things *like me*, tables chairs.

Whilst sitting on my lap, she says "mummy, mummy it's happening again.. i'm having a bad dream.. crying, screaming, shaking..
**Oh i meant to say, a few hours earlier l gave her panadol because l thought it may have been a headache/migraine, but it didn't help.**

I ended up giving her a sedation dose of Phenergan and it's knocked her out. And before anyone gives me a hard time, i have only given it to her in the past due to food reaction, hives and bad mozzie reactions.

Can anyone shed any light? Anything will help.. I do have an eye appointment for her for tomorrow with a new eye doctor (not happy with the one we have been going to) and i have a GP appoint for her on Friday..

I really don’t know what to do.. I’m actually really scared that something is really wrong with her and l’m going out of my mind.. I’ve been up all night, google’ing just trying to figure out what l can do to help her…
 
you poor thing how terrfying for the both of you. so was last night from an acutal dream or she was awake and seeing things getting bigger and smaller? if you are not happy with the dr's answer, always get a second and third if need be. trust that mothers intuition. so sorry this is happening to you both, keep us updated xx
 
You need the assistance of specialist medical professionals. I understand your need for reassurance, but I don't think a reptile forum is the place to get the help you need.

Jamie
 
If I was you ajandj, I would have this thread deleted this morning and seek an urgent doctor's appointment TODAY, and get an urgent referral to a neurologist. Do not seek advice on serious medical issues here. I can't be more blunt than that.

Jamie
 
I personally wouldnt bother with the eye specialist. If things are changing sizes etc it will be more to do with the messages sent to the brain not the eyes directly.

I hope all goes well for you, children can be very scary! My daughter was born deaf and the doctors told us it was brain damage till she was 3!
 
Hello Ajandj
I hope the new doctor can give you some answers. My heart goes out to you both. I have children too and I would have done the same thing ask for advice and got on the internet also there is nothing wrong with Phenergan, I have it to in my med cupboard (for allergies) and again done the same thing :) Maybe ask the doctor for a CT scan and a MRI scan???? Once again I hope you get some answers today. Good luck, thinking about you both and keep us posted :)
 
Good luck ajandj... please treat this as urgent.

Jamie
 
l'm not here asking for medical advise... l a merely asking if anyone has had the same thing...

I have an eye appointment today and l just got off the phone to my GP and he is going to see her today.

I do know that getting medical advice from the internet is danderous and un wise. My sister inlaw does it and all of a sudden she has all the symptoms known to man.
I do not understand my daughter then she says that things get bigger then small. If l could solve that part of the mystery, l think l would be half way there.

sorry if my response sound harsh and defensive but l've been awake for over 24 hours, l've spent hours trying to calm my daughter so l'm tired, anxious and really scared.

This morning my daughter has no memory of getting out of bed, no memory of have the *YUK* medicine (phenergan with a chocolate frog chaser) or bad dreams.. nothing... i guess that's good in the sense that she's not worrying about whats happening
 
Your in Melb, I would be taking her to the RCH TODAY.
 
I think you are doing the right thing taking her to a different Eye place and a different GP. There could be a number of different things that could be causing this, and the only way to find out is testing for different things. When you go to the GP make sure they do a Neuro test and Id be asking for an allergy test 2 (Vertigo can be caused by some sweetners found in toothpaste, juice etc)

When you see the eye spec. you can tell them whats been going on and they can send you on to specialists/send info on to your GP and work 2gether to find out whats going on.

Good luck and please let us know how you go!
 
I am a mum of 6 & if the best advice I can give you is get your little girl straight to the emergency department at your nearest hospital. Going through your local GP can take weeks to get answers compared to a decent hospital with the capabilities to test your daughter & find out what's going on straight away. I truly wish you both luck & hope they find out what's going on:)
 
Just to reiterate, she needs specialist referral today. Your best bet is going to be through RCH where she can be seen by a paediatric neurologist.
 
it sounds very similar to Alice in Wonderland syndrome....
Epilepsy is a cause of this and i urge you to take her to the emergency department where they should get a neuro consult down...here's some info
Alice in Wonderland Syndrome
 
I hope everything goes well for you both today ajandj. There are a few mums/dads on here who will be happy to be here if you need to vent in some down time if you need it :)
 
Thats really sad for you even more so for your poor little daughter skip the eye doctor and take her to a childrens hospital hope that you can find the right help
 
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